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betty must die i have melanoma. i named it betty. you know what needs to happen. menu why blog? why betty? why me? what’s melanoma? timeline search for: hey there, update sorry it took me a while to post this. life, ya know? some news since my last post. the pain has totally subsided, as has the twitching and tingles. my ear, inside, still feels odd, but it’s either getting better or i’m getting used to it because i don’t notice as much anymore. anyway, i met with my surgeon to discuss the weirdness, and he agreed with my oncologist that all seems normal. he’s not concerned yet, although he agrees we should keep an eye on things. he thinks it was actually strange (“rare”) that my face/head went back to normal in the first place, so on one hand, we shouldn’t be surprised that i’m experiencing these symptoms. the other, of course, is that it’s weird that the symptoms are only showing up now. basically, i’m doing these oddly as usual. so that’s all for the time being, hopefully. posted in health updates and tagged not this shit again , pain , wtf on february 25, 2018 by betty's nemesis . oh, hey there yeah, it’s been a while. but you know what they say: with cancer, no news is good news. okay, maybe they don’t say that, but they should. things have been uneventful here. i was scanned again last week, and the good news is my scans were all clear! that’s two years worth of clear scans since my last treatment. so why am i posting? because i’m no longer convinced the scans are the whole picture. um, pun not intended. i feel like i have an earache in my left ear, and while sometimes an earache is just an earache is just an infection, my overall pain levels (head, not ear) have been on the rise. and nerves in my face are twitching. the last time they did was before the oh-so-fun paralysis kicked in. my oncologist knows. he’s examined my scans multiple times, felt up my face and lymph nodes, and poked around inside my ear and pronounced the skin normal looking. he’s not overly concerned yet. although betty was the master at hiding from my scans before, the docs have a pretty good base of scans since my last surgery to draw on for comparisons. so i’m supposed to be giving things another week and seeing if the pain goes away on its own. (i’ve had pain on and off for the last couple years; that’s nothing new. it’s just that this pain is different, and has twitching with it.) it’ll be a week on monday, so i guess i’ll see what the weekend brings. preferably nothing cancerous. posted in health updates and tagged not this shit again , pain , scans on february 1, 2018 by betty's nemesis . leave a comment not dead yet! in case you’ve been wondering where i’ve been. not much has been going on, and i almost forgot how to log into this blog. anyway… i had my most recent scans before christmas, and i got the news yesterday that they came back clear. so yay! it’s been over one year now. oncologist wished me a boring new year. i think i deserve one. meantime, i celebrate with my third annual fuck betty tattoo next week. may we all have a boring new year (health-wise). and happy 2017! posted in health updates and tagged scans , tattoos on january 4, 2017 by betty's nemesis . 1,396 comments i’m so inflammatory i could be a republican presidential nominee no wait, sorry. i guess i’m just inflamed? whatever. i’ve been remiss with my latest update. on july 18th i saw a rheumatologist (actually several at once) at marvelous ginormous hospital. they poked me, prodded me, and asked a lot of questions. then they sent me to have blood drawn. they agree with my oncologist that my issues (random swellings, including congestion, and hair loss) are probably autoimmune and caused by my treatment. but they don’t follow a normal pattern and don’t appear to be classified as any kind of known disorder. no known disorder means no treatment plan – none other than high doses of ibuprofen until my foot swelling goes down anyway.* *spoiler: it’s been a week and half, and the swelling hasn’t gone down. so while i wait and grow steadily balder, the rheumatologist is going to confer with an ent who specializes in autoimmune-caused sinus issues. and that’s where i’m at. swollen and shedding, but breathing. (until insurance cuts off my sinus meds which yes, they did, but my original ent found a way around that. because she’s clever and they’re assholes.) posted in health updates and tagged fu insurance , side effects on july 27, 2016 by betty's nemesis . 1,149 comments you won’t like my immune system when it’s angry colitis treated. two sets of good looking post-treatment scans. obviously, it was getting too calm around here. we can’t have that. it makes for a boring blog. so let’s backtrack to april… right around when i came off the prednisone, i started getting congested. at first, it seemed like the immune therapy might have caused me to have some nasty seasonal allergies. it happens. but the otc allergy meds didn’t help. nasal steroids didn’t help. my sinuses were so congested that even when i couldn’t breathe through my nose at all, i could feel them swelling more. my nose would literally throb as things smushed even more forcefully together. also, i lost my sense of smell. my allergen tests came back negative, but things didn’t get under control until june when my surgeon put me on a prescription nasal antihistamine combined with a nasal steroid. i could breathe again (and eventually smell again), but if i stop taking them, i immediately re-congest. may now. i wake up one morning and it looks like someone’s punched me in the left eye. the bruising goes away, but my eye remains swollen. june. one day my left knee starts swelling. over the course of a week, it becomes so swollen i can’t bend my leg. x-rays show nothing wrong, and my pain (and lack of it) confuses my orthopedist. she guesses it’s a strange meniscus tear, drains my knee, gives me a cortisone shot, and sends me to physical therapy. all seems well. about two weeks ago, my hair starts falling out in large clumps again. i have no clue why. then july, last week. my right foot starts swelling and hurting. wondering what the hell i did this time, i go to the walk-in clinic on saturday because the pain is horrific. again, x-rays show no damage. the nurse practitioner talks to me, and when i bring up my knee, she has an epiphany. this could all be autoimmune related. she orders three blood tests, and the one for a general inflammation response comes back positive. yay? answer? maybe. i saw my oncologist this morning, and in his words, he “takes responsibility” – it’s probably all treatment related. my immune system is “still really angry.” this is good for all things cancer, but obviously not so great for other things. unfortunately, when people have these autoimmune responses to treatment, usually they follow a known diagnosable pattern. mine appear to be random. (doc told me again how i make his life difficult.) so, now i wait and hope the orthopedist can drain my foot next week, but that doesn’t seem likely. doc said the fluid is spread out; there’s no pocket to drain. i will cross my fingers anyway because my foot is huge, i limp, it hurts if i stand or walk too long, and i only have one pair of shoes (my chucks) that fit. i am not happy. if i get too fed up, i might repeatedly stab my own foot at this point in the hopes that shit will leak out. meanwhile, doc and surgeon are going to discuss me and figure out where to send me next. i still can’t have a summer off. last one was 2013. on the other hand, it’s not cancer. *stab stab stab* posted in health updates and tagged side effects , tmmi , wtf on july 12, 2016 by betty's nemesis . 651 comments scan update yeah, it’s been a while. i know. but in the world of cancer, no news is good news. i mean, if i’d ended up in the hospital again, i’d have been posting like crazy to pass the time. so, good news! scans are unchanged since march. betty is either dead or still being held at bay by my

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Whois Information

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Domain Name: BETTYMUSTDIE.COM
Registry Domain ID: 1904866467_DOMAIN_COM-VRSN
Registrar WHOIS Server: whois.namecheap.com
Registrar URL: http://www.namecheap.com
Updated Date: 2018-02-14T16:37:34Z
Creation Date: 2015-02-23T01:10:17Z
Registry Expiry Date: 2019-02-23T01:10:17Z
Registrar: NameCheap Inc.
Registrar IANA ID: 1068
Registrar Abuse Contact Email: [email protected]
Registrar Abuse Contact Phone: +1.6613102107
Domain Status: clientTransferProhibited https://icann.org/epp#clientTransferProhibited
Name Server: NS1.LINODE.COM
Name Server: NS2.LINODE.COM
Name Server: NS3.LINODE.COM
Name Server: NS4.LINODE.COM
Name Server: NS5.LINODE.COM
DNSSEC: unsigned
URL of the ICANN Whois Inaccuracy Complaint Form: https://www.icann.org/wicf/
>>> Last update of whois database: 2018-09-11T15:04:21Z <<<

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  REGISTRAR NameCheap Inc.

SERVERS

  SERVER com.whois-servers.net

  ARGS domain =bettymustdie.com

  PORT 43

  TYPE domain

DOMAIN

  NAME bettymustdie.com

  CHANGED 2018-02-14

  CREATED 2015-02-23

STATUS
clientTransferProhibited https://icann.org/epp#clientTransferProhibited

NSERVER

  NS1.LINODE.COM 162.159.27.72

  NS2.LINODE.COM 162.159.24.39

  NS3.LINODE.COM 162.159.25.129

  NS4.LINODE.COM 162.159.26.99

  NS5.LINODE.COM 162.159.24.25

  REGISTERED yes

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